THE HOLISTIC PALLIATIVE CARE
Introduction:
It is hard to live with a serious illness. You may feel
lonely, angry, scared, or sad. You may feel that your treatment is doing more
harm than good. You may have pain or other disturbing symptoms. Palliative care
can help you and your loved ones cope with all of these things.
Palliative care is a kind of care for people who have
serious illnesses. It is different from care to cure your illness, called
curative treatment. Palliative care focuses on improving your quality of
life-not just in your body, but also in your mind and spirit. Sometimes
palliative care is combined with curative treatment. Palliative care is most
likely the way of Islamic teach how to treat any illness, we must treat with
total approaches and the most important factors that will boost up human
wellness is their spiritual and soul wellness by improving our relationship with
Allah.
The kind of care you get depends on what you need. Your
goals guide your care. Palliative care can help reduce pain or treatment side
effects. Palliative care may help you and your loved ones better understand
your illness, talk more openly about your feelings, or decide what treatment
you want or do not want. It can also help with communication among your doctors,
nurses, and loved ones.
Our approaches of palliative care also include the
understanding of our self and relationship with the Creator. Allah. We will use
the Islamic faith and teach to ensure our soul and mind are very closed to
Allah. Whose Great Creator that give our mind peace, happy living, and the
health condition of our biological structure. And finally Allah that fix our
life line to the death and the day after the death. The final chapter of human
life that will be in the haven of hell.
To achieved this we will use the concept of Pondok Moden lifestyle, this
mean we must plan our daily lifestyle is most likely the way our Prophet
Muhammad SAW teach us to do so, in other
words we must folloe the sunnah.
How can I work with a palliative care team?
Good communication is a large part of palliative care. Your
palliative care providers will encourage you to listen to your feelings and to
talk about what is most important to you. They will also try to explain things
to you and your loved ones in ways you can understand. Then they will work with
your primary care doctor to make sure that your care is meeting your goals,
such as managing disturbing symptoms or making future plans.
You may talk about anything and everything during a
palliative care visit, including:
- Treatment.
- Pain and medicine side effects.
- Emotional and social challenges, such as helping your family get along better.
- Spiritual concerns.
- Goals and dreams.
- Hospice care.
- Advance directives. Advance directives are instructions to your doctor and loved ones about what kind of care you want if you become unable to speak for yourself.
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Learning about palliative care:
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Receiving palliative care:
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Why would I want
palliative care?
Palliative care providers are interested in what is bothering
you and what is important to you. They want to know how you and your loved ones
are doing day-to-day. They understand that your illness affects not just you,
but also those you love.
Your palliative care providers will ask questions about how
your illness affects your emotions and spirit. Then they will try to make sure
that your medical care meets your goals for your body, mind, and spirit. They
will also help you make future plans around your health and medical care.
You might see a palliative care provider just once or maybe
more often. He or she will work with your other doctors to give you the best
care possible.
Who is involved in
palliative care?
Palliative care actively involves you and your loved ones.
Together you will work with health care providers in your doctor's office or
your home, or in a hospital, nursing home. If you are interested in palliative
care, talk with your doctor. He or she may be able to manage your palliative
care needs or may refer you to someone who is trained in palliative care.
Many hospitals now have palliative care teams. These teams
often include palliative care doctors, nurses, and social workers. The teams
may also include spiritual advisors, dietitians, occupational therapists,
pharmacists, physical therapists, respiratory therapists, and volunteers.
It's hard to have good days when being sick makes you feel
sad, lonely, uncomfortable, or scared. Your quality of life can suffer, not
just in your body, but also in your mind and spirit.
Palliative care is the field of medicine that helps give you
more good days by providing care for those quality-of-life issues. It includes
treating symptoms like pain, nausea,
or sleep
problems. But it can also include helping you and your loved ones to:
- Understand your illness better.
- Talk more openly about your feelings.
- Decide what treatment you want or don't want.
- Communicate better with your doctors, nurses, and each other.
Hospice
care is a type of palliative
care. But it's for people who are near the end of life. Here's how the two
kinds of care are different.
Palliative care: This is treatment to help you feel
better physically, emotionally, and spiritually while doctors also treat your
illness. It can include care such as pain relief, counseling, or nutrition advice.
Hospice
care: Again, the goal is to help you feel better and to get the most out of
the time you have left. But you no longer get treatment to try to cure your
illness.
When does the care happen?
Palliative care: This care can happen at any time
during a serious illness. You don't have to be near death to get this care.
Hospice care: In most cases, you can choose hospice
care when your doctor believes that you have no more than about 6 months to
live.
Palliative care: This type of care can be provided
wherever you're being treated for your illness. You can get it in the hospital,
at your doctor's office, in a nursing home, and even in your home.
Hospice care: Most hospice care is done in the place
the patient calls "home." This is often the person's home. But it
could also be a place like a nursing home or retirement center. And hospice
care may also be given in hospice centers, hospitals, or other facilities.
Who provides the
care?
Palliative care: There are doctors and nurses who specialize
in this field. But your own doctor may also provide some of this care. And
there are many other types of experts who may help you, like social workers,
counselors, therapists, and nutrition experts.
Hospice care: In hospitals, hospice centers, and other
facilities, care is provided by doctors, nurses, and others who specialize in
hospice care. In the home, a family member is usually the main caregiver. But
the family member gets help from care experts who are on call 24 hours a day.
How is the care paid
for?
Palliative care: Most health insurance covers palliative
care. But the amount of coverage may vary.
Hospice care: Health insurance usually covers hospice care.
It's also covered by Medicare and Medicaid. You are eligible for hospice care
regardless of your ability to pay.
How Palliative Care
Can Help You
Palliative care can help you feel better as a whole
person-in your body, mind, and spirit. It helps you focus on "the big
picture" of your life. Palliative care includes your family and loved
ones.
Sometimes talking with someone who is not a friend or family
member can help you see more clearly. This person could be a palliative care
provider.
It is important to talk about your goals and wishes sooner
rather than later. That way, you, your loved ones, and your doctors know what
you want. If you choose, you can be a part of every decision about your care.
Palliative care works best with open communication. Try to
focus on what you can do to improve communication with your palliative care
provider. If you do not understand what is being said, ask questions until you
do. You may want to write down your questions before your appointment or to
bring a loved one to your appointment. Important questions to ask include:
What is my
diagnosis?
What are my
treatment options?
What are the side
effects of these treatments?
What do you think
will happen if I choose not to treat my illness?
How long do you
think I have to live?
How soon do I need
to make a decision about which treatment to use (or to not use)?
How will my
illness and care affect my loved ones?
You might talk about many things during a palliative care
visit, including:
Treatment. You get to decide how well your treatment is
working and if you want to continue it. Maybe you really want to see your
grandson graduate, so you decide to continue treatment even though it makes you
feel sick. Or maybe you prefer to stop or limit treatment because you would
rather focus on the quality of your life rather than the length of your life.
Wallahu'alam.
