My first book publish by FeedARead.com is ready and a you can purchase from FeedARead.com.
Thanks God. Alhamdulillh.
Preface
My intention to write this book when I read one article related to “Long-Term Care
For the Stroke Patient in Family Home Care”. Written by Kathy Henley Haugh,
PhD, RN. The author relates the
exemplary care of an older woman who sustained a stroke at the age of 84. The
family provided care for this stroke survivor admirably until her death 10
years later. The woman’s disabilities included right-sided paralysis,
dysphasia, dyspraxia, and aphasia, as well as complications specific to enteral
tube feedings, seizure activity, and urinary elimination. In the United States,
approximately 780,000 Americans suffer a new or recurrent stroke each year. The
median survival time after a first stroke for individuals age 6069 years is 6.8
years for men and 7.4 years for women; for those older than age 80 years, the
median survival time is 1.8 years for men and 3.1 years for women. Fifty
percent to 70% of stroke survivors regain functional independence; 15-30% are
permanently disabled.
Due to the statistic given, I keen to write my
experience as care giver to my stroke
wife for more 15 years, through my experienced and with the ability to adopted
the patient as the responsibility of husband to take care and give her full
support either emotionally and her daily living need. On other word caring by
holistic approach able to speed up the healing process and changes to recover
back to normal position is more and I manage to give her the hope for future
life and she has recover up to 90 % back to normal condition.
My key factor to be a successful caregiver is by
put intention to take care my wife as
the responsibility of a husband that been lay down by my religious marriage
guideline. One of the responsibility is to take care wife health and he
happiness. As a husband I am committed to take care her health after 20 years
of our marriage she give her sacrifice to give birth my kids for seven times.
This prove that my wife is a good wife and has no complain of suffering herself
to carry our baby for the time of 9 months before gift birth. I am so sympathy
with her sacrifice and able to face pain and sorrow just to please her husband
desire.
When she at the age of 42, suddenly she was attack by
stroke (AVM) and as a result she was paralyze for half body on the right side.
After warded for 30 days she was discharge from hospital and started the home
care. At the first day at home she cannot walk, very hard to speak and need
help for her daily living need (DLN). I have to do everything by myself due to
the incident when I hired the maid she always compliant and not satisfied with
the service given. At that time I am still working as Senior Manager at Private Company. Every day when I went home
she always cry and tear dropped at her chick.
Thus make me worried and to avoid her become more depress and tension I
made a decision to let go the maid and put the intention to take care of her DLN by myself and assist
by my children.
For the first year as caregiver I manage to settle my
task successfully. As the time passed for third year. Everything was change, at
most her attitude and moral been rivers to be depress and easily be a bad mood
person. This made me so tired to take
care of her desire and attitude and make me bore and start coming of negative
talk in my mind that my wife is a burden to my life. This the time that is very
critical that I am facing and there was a desire to marriage for second wife.
But when I made my personal analyze If I do so that cannot settle my problem if
not lucky may be a new problem will be arise and will make my position more
stress and possibly will effect my future life, So I made determination to continue my responsibility as husband and
continue as caregiver to my wife.
From that date I made a paradigm shift by revise my
personal effort and put intention that all the problem facing by me is a test
form His Mercy God Allah. I have to face all the test with passion and pray to
Allah for His help and pleasant and if I am success to face the challenge
given, the reward is great at the hereafter. The reward that every body desire
and hope is the get into heaven. With thus intention I manage to face all the
pain and sorrow and with patience as the time goes, it become part of my daily
routine.
After 15 years as caregiver I am adopted all the skill
and knowledge what I am have what I am called as holistic approach treatment
for stroke patient. Alhamdulillah (thank God) my wife able to get batter healing process and now she able
to recover back nearly 90% back to normal. As at current status she manage to
walk without stick, able to do herself for HLN and the most important is that
she has recover back to normal person in term her thinking, memory and very
confident for her future life.
The latest development with my wife performance, one
doctor whose treat my wife admire my effort to give special care to able my
wife healing process go smooth and he endorse my method of treatment is better
to explore more for future method of prolong sickness patient. As result of my
success he appoint me as a consultant to his pilot project to set up a center
for holistic treatment.
In this book I wrote my experience in phases. First
phase is the practice that I am applied to lead my marriage and my family.
These practices able me to strength my love with my wife and we are happy for
35 year of our marriage and get together peacefully.
The second phase of the story is about the challenge,
pain and sorrow I am facing for 15 years till now when my wife was attack by
stroke. My ability to pass through all the pain and sorrow with patience and
able to continue my marriage and also able to ease the healing process that my
wife able to gain back her health and stay with love, joyful and has an
optimistic future in life.
As caregiver for the first one year is the time I
learnt a lot about taking care our lover who need aide nearly 100 % of her
daily living need. As the time goes on, she has regain her movement, the mental
healing is more improve and she manage to talk as normal person. During this
time it happen in the range of 3,4, and 5th year, Thus the critical
and hard time for to face the attitude of stroke survivor which are very
sensitive, fussy, moody that made me as caregiver very stress to handle. Thus
the time I am nearly give up to take care of her. During this critical
situation I has to use all my soft skill
regarding, motivation, communication, interpersonal, time management and
reactive thinking, Alhamdulillah with
patient I mange to resolved all the hardship and problems facing and
finally with the blessing of God, I able to prolong my responsibility to take
care my stroke wife with successfully gain her healing process and till now
after 15 years time, she war recover back her confident, cheerful live and the most important achievement is that she can
adopted the handicap of her right arm and leg to keep on the live as normal
person, thus tons of experience I learnt in the time frame of 15 years, is a
valuable knowledge that need to share with public, who are now caring their
spouse as the stroke survivor. By writing my experience in this book all
our friend over the world can get the
basic info as guidance to those newly get the title of a caregiver of stroke
survivor.
I hope my experience which I am recorded in this book
will be one of the source for those faces the same problem or those who has to
take care stroke survivor. Hopefully this book can help those facing depress
and stress as a care giver to try my method of healing process to recover back
the stroke patient and also to manager him or herself as caregiver which may be
facing stress and depress situation .God blessing.
Happy
Reading.
NIK RAIHAN NIK ABD RAHMAN
PANJI, MALAYSIA
1 December 2015
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